Wednesday, July 30, 2014

Freedom

I am still processing the information yet I cannot but help to share the news:

I no longer have to take warfarin.


whaaat


Nate's wearing a shirt today with this saying that completely expresses my reaction.

No more coumadin?  No more INR checks?  No more dietary restrictions and medication conflicts?  No more bruising?  No more medic alert bracelet?

Yes.

My hematologist is amazing but his communication method is hard to interpret.  I felt compelled to confirm this information several times in order to be sure.

No more warfarin?
As in: tonight I can stop taking this medication?
I never have to take it again?

Yes.

Apparently, three years is sufficient time for a PE patient (with an unknown source of the clots - which is approximately 1/3 of PE patients) to be anticoagulated (according to 95% of the specialists).  I could choose to continue to be anticoagulated but the risk of bleeding outweighs the preventative measure.

I was surprised.  I had anticipated a lifelong obligation to warfarin.  It isn't the easiest medication to take as there's so many things to balance and check.   However, in many ways, I had been comforted taking it; it was a safety net for my brain, an assurance that I would never have another PE again.  There is a small part of my brain that flagged anxiety - which I discussed with the doctor - around my concern about reoccurrence as asthma does often signal with chest pressure and (unsurprisingly) shortness of breath.  However, the larger part of my thinking process reminded me that when I knew, I knew that something major was amiss.  Ultimately, I know that I am ready to face that anxiety.  I am ready to start taking a low dosage of asprin for 3 months as I transition off.  I am ready to eat kale (and a dozen or so of other foods high in vitamin K) in copious amounts.  I am ready to cancel those future bloodwork appointments.  I am ready to move on.


Just two weeks away from the three year mark of the trip to the ICU, I can't help but feel a sense of freedom.

Ephesians 3:20 indeed.   

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